I'm a full-time wife and mom of two adorable boys. When I'm not busy trying to keep up with them I enjoy photography, traveling, planning parties and a little bit of reading.

In February of 2008 I was diagnosed with an incurable terminal lung illness, though God promised me a full and complete healing. While we wait for His timing, we're taking it one day at a time, and standing in awe of how God's using all of this for His glory. The tough road we've traveled has given us a new perspective on the fragility of life. Memories are more important to us than ever before. The goal of this blog is to share some of our family life - the ups and downs, the joys and probably some of the pains as well. It's mostly meant as a personal journal of sorts, but you're welcome to share in it. We'd like to take this opportunity to say ...


Friday, January 15, 2010

moment of clarity

Do you ever find yourself living in the dark (sometimes even unknowingly) - and then suddenly a bright neon, flashing light goes off inside your head - and the world's instantaneously so illuminated that your head's kinda spinning - and you feel kinda dumb that you had been so ... well, so dumb?

No?  Oh.  It's just me.  Great.

Well, my moment of clarity happened at about 1:45 this morning.

I had griped in my email on messes about how I was near the point of exhaustion - and the messy house (that I didn't have the energy to deal with) was making matters exponentially worse.... (Sorry that I emotionally vomited all over you, by the way. But the topic did seem to spark conversation on my facebook page!)  Well - ummmmm - where should I begin?

I'm on a continual iv that dialates the blood vessels in my lungs, thus helping me breathe.  No - correction - this makes it possible for me to breathe at all.  It used to go directly into my heart, and now goes into my tummy (like an insulin pump).  The pump is fairly discretely hidden under my clothing (though sometimes part of the iv tubing peeks out of the bottom of my shirt.  When I put the medicine in the pump, it lasts three days.  Once it's almost empty, the pump starts beeping to remind me to add more medicine.  Well, it started (quietly) beeping at 1:24 am.  It was an act of God (and I really mean that) that I even heard it!  (If I don't get the medicine constantly, the blood vessels in my lungs could collapse - causing a heart attack - and my death.)  So, I groggily got up wondering why in the world it was almost empty at that hour, and dutifully went downstairs to resolve the problem.

Because of the dire consequences of me not getting the medicine, I have two pumps.  So, if one malfunctions I have a back-up.  So, every third day, I switch between the two pumps (just as I was trained).  This past Friday night I did an medicine increase.  After those, I'm generally um... "not very social" for at least 36 hours.  The intensity of side effects vary from time to time - sometimes it's like a hangover, and sometimes it's kinda like I've undergone chemo.  This last one wasn't too bad.  Anyway ......

Back to my "moment of clarity" ..... Early this morning when I was refilling the medicine in the pump I suddenly realized that I had made a HUGE mistake.  I never programmed the second pump for the increased dose.  So, on Friday night I went from 36 ng to 38 ng - and then when I switched pumps I went back down to 36 ng.  It might seem that it shouldn't make that much of a difference since I wasn't on the higher dose that long, BUT the body adjusts quickly to it - and suddenly my blood vessels were more constricted and it was struggling to get oxygen again.  IT WAS A HUGE MISTAKE! No wonder I was so tired and irritable and just plain miserable!!!!  I was having a tough time breathing!

So, last night I fixed the problem.  I'm back at 38 ng - and tonight I'm scheduled to go up to 40.  It's amazing - I have almost no side effects to day of last night's increase.  I'm kinda "slow" and have a slight headache - but my body was CRAVING the extra medicine.  This is definitely one mistake I plan NOT to make again!

So .... I've already got more energy - I've been happily tidying up the house a bit and it's only been about 9 hours since the increase.  I'm feeling MUCH better, and I'm sorry that I spewed my annoyance (at my lack of energy to deal with my messy house) all over you.  In fact I've kinda been verbally spewing all over everything the past couple days.  Sorry.  I'll try to be more ... respectful ...

1 comment:

Sandra said...

Hello! Thank you for visiting my blog and leaving such a wonderful comment about my mantel. I read your post and my heart goes out to you. But you know what? My favorite bible verse is "I can do all things thru Christ who strengthens me" and you will get that strength you need from HIM. I will include you in my prayers as well. Visit my blog anytime. :)