I'm a full-time wife and mom of two adorable boys. When I'm not busy trying to keep up with them I enjoy photography, traveling, planning parties and a little bit of reading.

In February of 2008 I was diagnosed with an incurable terminal lung illness, though God promised me a full and complete healing. While we wait for His timing, we're taking it one day at a time, and standing in awe of how God's using all of this for His glory. The tough road we've traveled has given us a new perspective on the fragility of life. Memories are more important to us than ever before. The goal of this blog is to share some of our family life - the ups and downs, the joys and probably some of the pains as well. It's mostly meant as a personal journal of sorts, but you're welcome to share in it. We'd like to take this opportunity to say ...


Wednesday, November 11, 2009

Bustin' Out!

My (favorite, fabulous, ultra-personal, insanely talented, life-saving) specialist - Dr. Alvarez is trying to start a PH program at UMPC Passavant in McCandless (a suburb North of Pittsburgh). He rounds at UMPC Presby (where I usually go), and at this facility too. He was so pleased that I was willing to be admitted at Passavant for the switch. Apparently nurses have been getting inservices about PH here for months, and (from my understanding) I had the honor of being the first patient being treated at the hospital specifically for PH.

So, in addition to my transition from IV Remodulin to Sub-Q Remodulin, I got to do lots of explaining and teaching of my own (from this patient's perspective) about the disease. Lots of nurses came through this (thank goodness, private!) room, so I could show them how the drugs are administered, explain what side effects I get, show them how to use the pumps, etc. It was only slightly intimidating that there were so many people in the room when I got the pump ready with medicine and injected myself with the sub-q for the very first time. I guess it's a good thing that I'm as even-tempered, confident, stable (health-wise), and fairly knowledgeable about my disease as I am since I was the first PH patient this staff encountered.

Dr. Alvarez has given his blessing...
(photo taken March 2008)
for me to bust out-a-here!
So, after all the paperwork (etc.) is done,
my limo will arrive...
most likely chauffeured by these hotties...

and take me HOME!!!

It's a good thing the whole house is already unpacked, 'cause I'm not good for much for the rest of the week till this pain subsides some. So, since we haven't paid for cable yet, it looks like we'll be stopping by the video store on the way home. But at least I'll be in my own bed, eating my own food, and hanging out with my favorite guys!

(And for those of you who've asked... Yes, I am hoping to make it to Wheeling this coming weekend - as long as the pain doesn't get tons worse.)

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