This is a four part episode of Mystery Diagnosis about Pulmonary Hypertension.
THIS IS WHAT I HAVE.
The process to diagnose me was different (not a 6 hour surgery). But I couldn't breathe anymore at that point, and was intubated for almost a week... while the docs started me on that same iv drug. But most of the rest of our lives are the same (oh - she was diagnosed at 13 after having symptoms for like 9 years, and I was diagnosed at 27 after having symptoms for 5 years)......
This clip is 5 minutes 19 seconds.